Document Detail


Guidelines for implementation of population-based newborn screening for severe combined immunodeficiency.
MedLine Citation:
PMID:  20490925     Owner:  NLM     Status:  In-Process    
Abstract/OtherAbstract:
Severe combined immunodeficiency (SCID) is a Primary Immune Deficiency that is under consideration for population-based newborn screening (NBS) by many NBS programs, and has recently been recommended for inclusion in the US uniform panel of newborn screening conditions. A marker of SCID, the T cell receptor excision circle (TREC), is detectable in the newborn dried blood spot using a unique molecular assay as a primary screen. The New England Newborn Screening Program developed and validated a multiplex TREC assay in which both the TREC analyte and an internal control are acquired from a single punch and run in the same reaction. Massachusetts then implemented a statewide pilot SCID NBS program. The authors describe the rationale for a pilot SCID NBS program, a comprehensive strategy for successful implementation, the screening test algorithm, the screening follow-up algorithm and preliminary experience based on statewide screening in the first year. The Massachusetts experience demonstrates that SCID NBS is a program that can be implemented on a population basis with reasonable rates of false positives.
Authors:
Anne Marie Comeau; Jaime E Hale; Sung-Yun Pai; Francisco A Bonilla; Luigi D Notarangelo; Mark S Pasternack; H Cody Meissner; Ellen Rae Cooper; Alfred DeMaria; Inderneel Sahai; Roger B Eaton
Related Documents :
12819315 - Longitudinal study of the national kidney foundation's (nkf) kidney early evaluation pr...
16319605 - Comparison of hearing screening programs between one step with transient evoked otoacou...
21784495 - Globally engaged nursing education: an academic program framework.
3772555 - Use and effectiveness of chest radiography and low-back radiography in screening.
7808215 - The influence of education and experience on ethical attitudes in neonatal intensive care.
21062185 - Accuracy and reliability of peer assessment of athletic training psychomotor laboratory...
Publication Detail:
Type:  Journal Article     Date:  2010-05-20
Journal Detail:
Title:  Journal of inherited metabolic disease     Volume:  33     ISSN:  1573-2665     ISO Abbreviation:  J. Inherit. Metab. Dis.     Publication Date:  2010 Oct 
Date Detail:
Created Date:  2010-10-05     Completed Date:  -     Revised Date:  -    
Medline Journal Info:
Nlm Unique ID:  7910918     Medline TA:  J Inherit Metab Dis     Country:  Netherlands    
Other Details:
Languages:  eng     Pagination:  S273-81     Citation Subset:  IM    
Affiliation:
New England Newborn Screening Program, UMass Medical School, Jamaica Plain, MA 02130, USA. anne.comeau@umassmed.edu
Export Citation:
APA/MLA Format     Download EndNote     Download BibTex
MeSH Terms
Descriptor/Qualifier:

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine


Previous Document:  The enzymology of mitochondrial fatty acid beta-oxidation and its application to follow-up analysis ...
Next Document:  Glycogen storage disease type III in the Irish population.