Document Detail

Guidelines on the early management of infants diagnosed with cystic fibrosis following newborn screening.
MedLine Citation:
PMID:  20605539     Owner:  NLM     Status:  MEDLINE    
BACKGROUND: Successful implementation of newborn screening (NBS) for cystic fibrosis (CF) depends on robust protocols, good communication and appropriate management of recognised infants. In response to current varied practice, the ECFS Neonatal Screening Working Group developed a consensus on the early management of these infants using the Delphi methodology.
METHODS: Following detailed literature review, statements were generated by a core group of experts and then assessed by a larger group using modified Delphi methodology.
RESULTS: Forty-one statements were written by the core group. Eighty-six CF specialists contributed to the modified Delphi process. During three rounds, extra statements were added and consensus achieved on 44 (one statement did not achieve consensus).
CONCLUSIONS: These statements will provide a framework for the management of screened infants in the first year of life. This process highlights the paucity of evidence on which to base management of these infants. To improve this situation, it is important that each infant with CF identified through NBS has opportunity to be included in a randomised controlled trial.
Isabelle Sermet-Gaudelus; Sarah J Mayell; Kevin W Southern;
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Publication Detail:
Type:  Journal Article; Practice Guideline    
Journal Detail:
Title:  Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society     Volume:  9     ISSN:  1873-5010     ISO Abbreviation:  J. Cyst. Fibros.     Publication Date:  2010 Sep 
Date Detail:
Created Date:  2010-09-27     Completed Date:  2011-01-31     Revised Date:  -    
Medline Journal Info:
Nlm Unique ID:  101128966     Medline TA:  J Cyst Fibros     Country:  Netherlands    
Other Details:
Languages:  eng     Pagination:  323-9     Citation Subset:  IM    
Copyright Information:
Crown Copyright © 2010. Published by Elsevier B.V. All rights reserved.
CRCM, Hopital Necker-Enfants Malades, INSERM U 845, Universite Parsi Descartes, 149 Rue de Sevres, Paris 75015, France.
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MeSH Terms
Consensus Development Conferences as Topic
Cystic Fibrosis / complications,  diagnosis*,  therapy*
Delphi Technique
Infant, Newborn
Lung Diseases / etiology,  therapy
Neonatal Screening / methods*
Nutrition Therapy

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine

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