| Growing up with sickle cell disease: a pilot study of a transition program for adolescents with sickle cell disease. | |
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MedLine Citation:
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PMID: 21602723 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
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We implemented the Duke Sickle Cell Disease (SCD) Transition Program for adolescents with SCD and investigated the knowledge about SCD; concerns and emotions about transitioning; and the initial impact of the Transition Program. Thirty-three adolescents participated in the initial study. Gaps in knowledge included ethnicities affected by SCD and inheritance of SCD. Adolescents were primarily concerned about transferring to a new medical team. There was a mix of both positive and negative emotions that varied over time. Overall, we have identified educational gaps and concerns and emotions about transitioning, which we will address through the Duke SCD Transition Program. |
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Authors:
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Grant M Smith; Vivian R Lewis; Elaine Whitworth; Deborah T Gold; Courtney D Thornburg |
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Publication Detail:
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Type: Journal Article; Research Support, Non-U.S. Gov't |
Journal Detail:
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Title: Journal of pediatric hematology/oncology Volume: 33 ISSN: 1536-3678 ISO Abbreviation: J. Pediatr. Hematol. Oncol. Publication Date: 2011 Jul |
Date Detail:
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Created Date: 2011-06-22 Completed Date: 2011-09-01 Revised Date: 2011-10-06 |
Medline Journal Info:
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Nlm Unique ID: 9505928 Medline TA: J Pediatr Hematol Oncol Country: United States |
Other Details:
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Languages: eng Pagination: 379-82 Citation Subset: IM |
Affiliation:
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Trinity College, Duke University, Durham, NC, USA. |
Export Citation:
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| MeSH Terms | |
Descriptor/Qualifier:
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Adaptation, Psychological Adolescent Adolescent Psychology* Anemia, Sickle Cell / psychology*, therapy* Continuity of Patient Care / organization & administration* Emotions Female Humans Male Pediatrics / organization & administration* Pilot Projects Program Evaluation Questionnaires |
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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