| From hype to mothballs in four years: troubles in the development of large-scale DNA biobanks in Europe. | |
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MedLine Citation:
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PMID: 16741348 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
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This paper analyses the difficulties experienced by three large European DNA biobanks. The first, Icelandic-based deCode, generated immense commercial interest and intense ethical controversy. As a biotechnology company, deCode succeeded, but the Icelandic Health Sector Data Base failed. The second firm, Swedish UmanGenomics, marketed itself as the 'ethical' biotech company. Management problems including the inadequate recognition of intellectual property issues led to the company failing to secure adequate investment. The third and largest, UK Biobank, has, as a non-profit organization, not experienced these problems. But when the product - bio information--is marketed, the issue of ethically acceptable purchasers could well become contentious. |
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Authors:
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Hilary Rose |
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Publication Detail:
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Type: Journal Article; Review |
Journal Detail:
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Title: Community genetics Volume: 9 ISSN: 1422-2795 ISO Abbreviation: Community Genet Publication Date: 2006 |
Date Detail:
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Created Date: 2006-06-02 Completed Date: 2006-10-19 Revised Date: - |
Medline Journal Info:
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Nlm Unique ID: 9810770 Medline TA: Community Genet Country: Switzerland |
Other Details:
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Languages: eng Pagination: 184-9 Citation Subset: IM |
Copyright Information:
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Copyright 2006 S. Karger AG, Basel. |
Affiliation:
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Department of Sociology, City University, London, UK. hiliaryrose@blueyonder.co.uk |
Export Citation:
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| MeSH Terms | |
Descriptor/Qualifier:
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Computational Biology Databases, Genetic / trends* Databases, Nucleic Acid / trends* Europe Humans Pharmacogenetics |
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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