Document Detail


Frequency of high-quality communication behaviors used by primary care providers of heterozygous infants after newborn screening.
MedLine Citation:
PMID:  23194821     Owner:  NLM     Status:  MEDLINE    
Abstract/OtherAbstract:
OBJECTIVE: To examine the quality of communication likely to be experienced by parents when being first informed about how newborn screening identified heterozygous "carrier" status for cystic fibrosis or sickle cell disease.
METHODS: Primary care providers (PCPs) of infants found to have carrier status were telephoned over a 48-month period, and asked to rehearse with a standardized patient how they would inform the infants' parent(s). 214 rehearsal transcripts were abstracted using explicit criteria methods to measure the frequency of five categories of high-quality communication behaviors.
RESULTS: Overall, PCPs used large amounts of jargon and failed to use high quality communication behaviors. On average, PCPs used 18.6 total jargon words (8.7 unique words), but explained 2.4 jargon words. The most frequent assessment of understanding was the close-ended version, although it was only seen in 129 of 214 transcripts. The most common organizing behavior was importance emphasis (121/214). Precautionary empathy was rare; the most frequent behavior was "instruction about emotion" (33/214).
CONCLUSION: The limited use of high-quality communication behaviors in rehearsals raises concern about parental understanding, decision-making, and psychosocial outcomes after newborn screening.
PRACTICE IMPLICATIONS: Measurement of specific behaviors may help PCPs to improve communication, and thereby improve the patient experience.
Authors:
Michael H Farrell; Stephanie A Christopher
Publication Detail:
Type:  Journal Article; Research Support, N.I.H., Extramural     Date:  2012-11-26
Journal Detail:
Title:  Patient education and counseling     Volume:  90     ISSN:  1873-5134     ISO Abbreviation:  Patient Educ Couns     Publication Date:  2013 Feb 
Date Detail:
Created Date:  2013-01-14     Completed Date:  2013-07-01     Revised Date:  2014-02-04    
Medline Journal Info:
Nlm Unique ID:  8406280     Medline TA:  Patient Educ Couns     Country:  Ireland    
Other Details:
Languages:  eng     Pagination:  226-32     Citation Subset:  N    
Copyright Information:
Copyright © 2012 Elsevier Ireland Ltd. All rights reserved.
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MeSH Terms
Descriptor/Qualifier:
Adult
Anemia, Sickle Cell / diagnosis*,  genetics
Attitude of Health Personnel
Communication*
Comprehension
Cystic Fibrosis / diagnosis*,  genetics
Empathy
Female
Genetic Testing
Heterozygote Detection
Humans
Infant, Newborn
Male
Neonatal Screening / methods,  psychology*
Parents / psychology
Primary Health Care
Professional-Family Relations*
Quality Improvement*
Quality Indicators, Health Care
Truth Disclosure
Grant Support
ID/Acronym/Agency:
K01 HL072530/HL/NHLBI NIH HHS; K01-HL072530/HL/NHLBI NIH HHS; R01 HL086691/HL/NHLBI NIH HHS; R01-HL086691/HL/NHLBI NIH HHS
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