Document Detail


Frequency of Usher syndrome in two pediatric populations: Implications for genetic screening of deaf and hard of hearing children.
MedLine Citation:
PMID:  20613545     Owner:  NLM     Status:  MEDLINE    
Abstract/OtherAbstract:
PURPOSE: Usher syndrome is a major cause of genetic deafness and blindness. The hearing loss is usually congenital and the retinitis pigmentosa is progressive and first noticed in early childhood to the middle teenage years. Its frequency may be underestimated. Newly developed molecular technologies can detect the underlying gene mutation of this disorder early in life providing estimation of its prevalence in at risk pediatric populations and laying a foundation for its incorporation as an adjunct to newborn hearing screening programs.
METHODS: A total of 133 children from two deaf and hard of hearing pediatric populations were genotyped first for GJB2/6 and, if negative, then for Usher syndrome. Children were scored as positive if the test revealed > or =1 pathogenic mutations in any Usher gene.
RESULTS: Fifteen children carried pathogenic mutations in one of the Usher genes; the number of deaf and hard of hearing children carrying Usher syndrome mutations was 15/133 (11.3%). The population prevalence was estimated to be 1/6000.
CONCLUSION: Usher syndrome is more prevalent than has been reported before the genome project era. Early diagnosis of Usher syndrome has important positive implications for childhood safety, educational planning, genetic counseling, and treatment. The results demonstrate that DNA testing for Usher syndrome is feasible and may be a useful addition to newborn hearing screening programs.
Authors:
William J Kimberling; Michael S Hildebrand; A Eliot Shearer; Maren L Jensen; Jennifer A Halder; Karmen Trzupek; Edward S Cohn; Richard G Weleber; Edwin M Stone; Richard J H Smith
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Publication Detail:
Type:  Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't    
Journal Detail:
Title:  Genetics in medicine : official journal of the American College of Medical Genetics     Volume:  12     ISSN:  1530-0366     ISO Abbreviation:  Genet. Med.     Publication Date:  2010 Aug 
Date Detail:
Created Date:  2010-08-12     Completed Date:  2010-11-30     Revised Date:  2011-08-01    
Medline Journal Info:
Nlm Unique ID:  9815831     Medline TA:  Genet Med     Country:  United States    
Other Details:
Languages:  eng     Pagination:  512-6     Citation Subset:  IM    
Affiliation:
Department of Genetics, Boys Town National Research Hospital, Omaha, Nebraska 68131, USA. bkimberling@gmail.com
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MeSH Terms
Descriptor/Qualifier:
Adaptor Proteins, Signal Transducing / genetics
Adolescent
Cadherins / genetics
Connexins / genetics*
Extracellular Matrix Proteins / genetics
Female
Genetic Testing / methods*
Humans
Male
Microarray Analysis
Mutation / genetics
Myosins / genetics
Oregon / epidemiology
Prevalence
Questionnaires
Sequence Analysis, DNA
Usher Syndromes / epidemiology*,  genetics*
Young Adult
Grant Support
ID/Acronym/Agency:
R01 DC002842-16/DC/NIDCD NIH HHS; R01 DCOO2842//PHS HHS; //Howard Hughes Medical Institute
Chemical
Reg. No./Substance:
0/Adaptor Proteins, Signal Transducing; 0/CDH23 protein, human; 0/Cadherins; 0/Connexins; 0/Extracellular Matrix Proteins; 0/GJB6 protein, human; 0/USH1C protein, human; 0/USH2A protein, human; 127120-53-0/connexin 26; EC 3.6.1.33/myosin VIIa; EC 3.6.4.1/Myosins
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From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine


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