| Federal privacy regulations and the provision of Early Hearing Detection and Intervention programs. | |
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MedLine Citation:
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PMID: 20679317 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
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To be successful, Early Hearing Detection and Intervention (EHDI) programs require individually identifiable information about children to be shared among people who are responsible for screening, diagnosis, early intervention, family support, and medical home services. Pediatricians and other stakeholders in the EHDI process often point to federal laws that were passed to ensure privacy and confidentiality in health care and educational programs as major obstacles to achieving efficient and effective EHDI programs. In this article we summarize the provisions of 3 federal laws (the Health Insurance Portability and Accountability Act [HIPAA], the Family Education Rights and Privacy Act [FERPA], and Part C privacy regulations of the Individuals With Disabilities Education Act [IDEA]) that most directly affect information-sharing in EHDI programs. We suggest strategies for sharing the information needed to operate successful EHDI programs while remaining in compliance with these laws, including obtaining signed parental consent to share information between providers, including an option on the individual family services plan for parents to permit sharing of the plan with pediatricians and other providers, and giving copies of all relevant test results to parents to share with providers as they wish. |
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Authors:
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K Todd Houston; Diane D Behl; Karl R White; Irene Forsman |
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Publication Detail:
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Type: Journal Article; Research Support, Non-U.S. Gov't; Research Support, U.S. Gov't, P.H.S. |
Journal Detail:
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Title: Pediatrics Volume: 126 Suppl 1 ISSN: 1098-4275 ISO Abbreviation: Pediatrics Publication Date: 2010 Aug |
Date Detail:
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Created Date: 2010-08-03 Completed Date: 2010-08-23 Revised Date: - |
Medline Journal Info:
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Nlm Unique ID: 0376422 Medline TA: Pediatrics Country: United States |
Other Details:
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Languages: eng Pagination: S28-33 Citation Subset: AIM; IM |
Affiliation:
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Department of Communicative Disorders and Deaf Education, Utah State University, Logan, Utah 84322-1000, USA. todd.houston@usu.edu |
Export Citation:
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APA/MLA Format Download EndNote Download BibTex |
| MeSH Terms | |
Descriptor/Qualifier:
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Child Child, Preschool Confidentiality / legislation & jurisprudence* Cooperative Behavior Deafness / diagnosis*, rehabilitation* Early Intervention (Education) / legislation & jurisprudence* Health Insurance Portability and Accountability Act / legislation & jurisprudence Hearing Loss / diagnosis*, rehabilitation* Humans Infant Infant, Newborn Mass Screening / legislation & jurisprudence* Neonatal Screening / legislation & jurisprudence Parental Consent / legislation & jurisprudence Patient Care Team / legislation & jurisprudence Referral and Consultation / legislation & jurisprudence United States |
| Grant Support | |
ID/Acronym/Agency:
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U52MC04391//PHS HHS |
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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