| Exploring family management of childhood brain tumor survivors. | |
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MedLine Citation:
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PMID: 19837960 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
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Family management of childhood chronic conditions consists of 6 family factors: (1) the family's view of the child's daily life, (2) the impact of the condition on family life, (3) the difficulty of family life, (4) the family's effort managing the child's condition, (5) the family's ability managing the child's condition, and (6) parental mutuality. Recently, the Family Management Measure (FaMM), which measures family management of children with chronic conditions (excluding cancer), was validated. The purpose of this descriptive study was to examine the comparability of these 6 factors in families with childhood brain tumor survivors. First, 14 advanced practice nurses who are experts in neuro-oncology and survivorship rated items on the FaMM as relevant and clear to families of brain tumor survivors. Second, 22 cognitive interviews with parents of brain tumor survivors described family management as comparable with families of children with other chronic illness. In this report, 2 hypothetical, contrasting case studies of family management are used to illustrate family management within the context of brain tumor survivors. |
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Authors:
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Janet A Deatrick; Erin K Mullaney; Kim Mooney-Doyle |
Publication Detail:
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Type: Journal Article |
Journal Detail:
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Title: Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses Volume: 26 ISSN: 1043-4542 ISO Abbreviation: J Pediatr Oncol Nurs Publication Date: 2009 Sep-Oct |
Date Detail:
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Created Date: 2009-10-19 Completed Date: 2009-11-30 Revised Date: 2010-12-03 |
Medline Journal Info:
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Nlm Unique ID: 8917825 Medline TA: J Pediatr Oncol Nurs Country: United States |
Other Details:
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Languages: eng Pagination: 303-11 Citation Subset: IM; N |
Affiliation:
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Center for Health Disparities Research, University of Pennsylvania School of Nursing, Philadelphia, PA 19104-4217, USA. deatrick@nursing.upenn.edu |
Export Citation:
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| MeSH Terms | |
Descriptor/Qualifier:
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Brain Neoplasms
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nursing,
psychology* Child Family* Humans Survivors* |
| Grant Support | |
ID/Acronym/Agency:
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R01 NR009651-01A1/NR/NINR NIH HHS |
| Comments/Corrections | |
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