Document Detail

Experiences of living with myasthenia gravis: a qualitative study with Taiwanese people.
MedLine Citation:
PMID:  23422699     Owner:  NLM     Status:  MEDLINE    
Myasthenia gravis (MG) is an auto-immune, neuromuscular disorder, which presents with symptoms of fluctuating muscle fatigue because of a dysfunction of the neuromuscular junction. This study explores the illness experience of patients with MG, their experiences of illness, its challenges, and their coping and support strategies. In-depth interviews were undertaken with nine participants with MG (six for a generalized type of MG, three for ocular type). Data were subjected to inductive content and thematic analysis. Four themes emerged from MG patients with associated subthemes. They were "perceptions of MG," "challenges of MG, "social support," and "adapting and adjusting to MG." The study reveals the way in which individuals respond to and cope with their diagnosis. The importance of social and peer support is a key factor as well as the development of psychological strategies to live with MG. The recognition that there was a need to recognize the role of Western medicine in controlling their disease was also an important finding.
Yu Tai Chen; Fu Jin Shih; Mark Hayter; Chang Chiu Hou; Jiann Horng Yeh
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Publication Detail:
Type:  Journal Article    
Journal Detail:
Title:  The Journal of neuroscience nursing : journal of the American Association of Neuroscience Nurses     Volume:  45     ISSN:  1945-2810     ISO Abbreviation:  J Neurosci Nurs     Publication Date:  2013 Apr 
Date Detail:
Created Date:  2013-02-20     Completed Date:  2013-08-12     Revised Date:  2013-11-07    
Medline Journal Info:
Nlm Unique ID:  8603596     Medline TA:  J Neurosci Nurs     Country:  United States    
Other Details:
Languages:  eng     Pagination:  E3-E10     Citation Subset:  IM; N    
Shin Kong Wu Ho-Su Memorial Hospital, National Yang Ming-University, Taipei, Taiwan.
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MeSH Terms
Adaptation, Psychological*
Asian Continental Ancestry Group / psychology*
Breathing Exercises
Meditation / psychology
Middle Aged
Myasthenia Gravis / nursing*,  psychology*,  therapy
Peer Group
Qualitative Research
Social Support
Spouses / psychology

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine

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