Document Detail


Enhancing haemophilia care through registries.
MedLine Citation:
PMID:  24762287     Owner:  NLM     Status:  In-Data-Review    
Abstract/OtherAbstract:
Clinical registries or databases have an increasing role in the management of inherited bleeding disorders. Initially, research-based registries provided valuable data and now national databases are increasingly being developed with multiple stakeholders, including persons with haemophilia (PWH) and payers, to enable improvements and efficiencies in care. Registries are extending to international collaborations to collect adverse event data and comparisons of national approaches to the management of haemophilia to improve the availability of product to PWH.
Authors:
G Dolan; M Makris; P H B Bolton-Maggs; J A Rowell
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Publication Detail:
Type:  Journal Article    
Journal Detail:
Title:  Haemophilia : the official journal of the World Federation of Hemophilia     Volume:  20 Suppl 4     ISSN:  1365-2516     ISO Abbreviation:  Haemophilia     Publication Date:  2014 May 
Date Detail:
Created Date:  2014-04-25     Completed Date:  -     Revised Date:  -    
Medline Journal Info:
Nlm Unique ID:  9442916     Medline TA:  Haemophilia     Country:  England    
Other Details:
Languages:  eng     Pagination:  121-9     Citation Subset:  IM    
Copyright Information:
© 2014 John Wiley & Sons Ltd.
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