Document Detail

Education and attitudes in families with adult polycystic kidney disease.
MedLine Citation:
PMID:  2057113     Owner:  NLM     Status:  MEDLINE    
The availability of methods for early accurate identification of individuals at risk of developing adult polycystic kidney disease (ADPKD) has raised a number of important clinical problems. As part of a project on clinical and genetic aspects of ADPKD, we have assessed the knowledge and attitudes of patients and their families. Most had a poor knowledge of the condition and its implications. Despite this, many were in favour of early, including antenatal, diagnosis. A videotape was therefore introduced as part of an educational programme to improve patients' knowledge. This resulted in a marked improvement in understanding of the condition. Although a significant number still wished to consider early diagnosis in their offspring, very few would consider terminating an affected pregnancy.
A M Macnicol; A F Wright; M L Watson
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Publication Detail:
Type:  Journal Article; Research Support, Non-U.S. Gov't    
Journal Detail:
Title:  Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association     Volume:  6     ISSN:  0931-0509     ISO Abbreviation:  Nephrol. Dial. Transplant.     Publication Date:  1991  
Date Detail:
Created Date:  1991-08-01     Completed Date:  1991-08-01     Revised Date:  2010-08-25    
Medline Journal Info:
Nlm Unique ID:  8706402     Medline TA:  Nephrol Dial Transplant     Country:  GERMANY    
Other Details:
Languages:  eng     Pagination:  27-30     Citation Subset:  IM    
Department of Medicine, Royal Infirmary of Edinburgh, UK.
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MeSH Terms
Attitude to Health
Genetic Counseling
Middle Aged
Patient Education as Topic
Polycystic Kidney Diseases / diagnosis,  genetics*,  psychology
Prenatal Diagnosis
Grant Support
//Wellcome Trust

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