| Disease self-management needs of adolescents with cancer: perspectives of adolescents with cancer and their parents and healthcare providers. | |
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MedLine Citation:
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PMID: 22544451 Owner: NLM Status: Publisher |
Abstract/OtherAbstract:
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PURPOSE: The ability for adolescents with cancer (AWC) to engage in disease self-management may result in improved cancer outcomes and quality-of-life ratings for this group. Despite this, a comprehensive self-management program for this group is yet to be developed. To ensure that self-management programming developed for AWC meets the needs of this group, discussion with key stakeholders (i.e., AWC, parents, and healthcare providers) is required. METHODS: A descriptive qualitative design was used. Adolescents (n = 29) who varied in age (12 to 18 years) and type of cancer, their parents (n = 30) and their healthcare providers (n = 22) were recruited from one large tertiary-care oncology center. Audio-taped semi-structured individual and focus-group interviews were conducted with participants. Transcribed data were organized into categories that reflected emerging themes. RESULTS: Four major themes, which captured the self-management needs of AWC, emerged from the data. These themes were: (1) disease knowledge and cancer care skills, (2) knowledge and skills to support effective transition to adult healthcare, (3) delivery of AWC-accessible healthcare services, and (4) supports for the adolescent with cancer. CONCLUSIONS: In order to provide comprehensive, relevant, and acceptable self-management programs to AWC, the voices of this population, their parents, and healthcare providers should be considered. Findings from this study will be used to develop and evaluate cancer self-management programming for AWC. IMPLICATIONS FOR CANCER SURVIVORS: Self-management represents an important avenue for exploration into improving cancer outcomes and quality of life for survivors of cancers during adolescence. |
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Authors:
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J N Stinson; L Sung; A Gupta; M E White; L A Jibb; E Dettmer; N Baker |
Publication Detail:
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Type: JOURNAL ARTICLE Date: 2012-4-28 |
Journal Detail:
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Title: Journal of cancer survivorship : research and practice Volume: - ISSN: 1932-2267 ISO Abbreviation: - Publication Date: 2012 Apr |
Date Detail:
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Created Date: 2012-4-30 Completed Date: - Revised Date: - |
Medline Journal Info:
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Nlm Unique ID: 101307557 Medline TA: J Cancer Surviv Country: - |
Other Details:
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Languages: ENG Pagination: - Citation Subset: - |
Affiliation:
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Child Health Evaluative Sciences, The Hospital for Sick Children, 555 University Avenue, Toronto, Ontario, M5G 1X8, Canada, jennifer.stinson@sickkids.ca. |
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From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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