Document Detail


Development of a comprehensive health-related needs assessment for adult survivors of childhood cancer.
MedLine Citation:
PMID:  23212605     Owner:  NLM     Status:  MEDLINE    
Abstract/OtherAbstract:
PURPOSE: Examine the construct validity, stability, internal consistency, and item-response performance of a self-report health needs assessment for adult survivors of childhood cancer.
METHODS: A 190-item mailed survey was completed by 1,178 randomly selected (stratified on age, diagnosis, time since diagnosis) Childhood Cancer Survivor Study participants (mean age, 39.66 [SD 7.71] years; time since diagnosis, 31.60 [SD 4.71] years). Minorities and rural residents were oversampled at a 2:1 ratio.
RESULTS: The final instrument included 135 items comprising nine unidimensional subscales (Psycho-emotional, Health System Concerns, Cancer-Related Health Information, General Health, Survivor Care and Support, Surveillance, Coping, Fiscal Concerns, and Relationships). Confirmatory factor analysis (n = 1,178; RMSEA = 0.020; 90 % CI = 0.019-0.020; CFI = 0.956; TLI = 0.955) and person-item fit variable maps established construct validity. Across subscales, Cronbach's alpha was 0.94-0.97, and the 4-week test-retest correlations were 0.52-0.91. In a Rasch analysis, item reliability was 0.97-0.99, person reliability was 0.80-0.90, and separation index scores were 2.00-3.01. Significant subscale covariates of higher need levels included demographics, diagnosis, and treatment exposures.
CONCLUSIONS: The Childhood Cancer Survivor Study Needs Assessment Questionnaire (CCSS-NAQ) is reliable and construct-valid, has strong item-response properties, and discriminates need levels.
IMPLICATIONS FOR CANCER SURVIVORS: The CCSS-NAQ potentially can be used to: (1) directly assess adult childhood cancer survivors' self-reported health-related needs, (2) identify individuals or subgroups with higher-level needs, (3) inform prevention and direct intervention strategies, and (4) facilitate prioritization of health-care resource allocation.
Authors:
Cheryl L Cox; Deborah A Sherrill-Mittleman; Barth B Riley; Melissa M Hudson; Lauren J Williams; Wendy M Leisenring; Margie G Zacher; Les L Robison
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Publication Detail:
Type:  Journal Article; Randomized Controlled Trial; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't     Date:  2012-12-05
Journal Detail:
Title:  Journal of cancer survivorship : research and practice     Volume:  7     ISSN:  1932-2267     ISO Abbreviation:  J Cancer Surviv     Publication Date:  2013 Mar 
Date Detail:
Created Date:  2013-02-08     Completed Date:  2013-08-21     Revised Date:  2014-03-07    
Medline Journal Info:
Nlm Unique ID:  101307557     Medline TA:  J Cancer Surviv     Country:  United States    
Other Details:
Languages:  eng     Pagination:  1-19     Citation Subset:  IM    
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MeSH Terms
Descriptor/Qualifier:
Adult
Female
Humans
Male
Needs Assessment*
Neoplasms / mortality,  psychology*,  therapy
Psychometrics
Quality of Life*
Questionnaires
Social Support
Survival Rate
Survivors / psychology*
Young Adult
Grant Support
ID/Acronym/Agency:
CA21765/CA/NCI NIH HHS; R21 CA142921/CA/NCI NIH HHS; R21 CA142921/CA/NCI NIH HHS; U24 CA055727/CA/NCI NIH HHS; U24 CA55727/CA/NCI NIH HHS
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