Document Detail


Development, validation and testing of an epidemiological case definition of interstitial cystitis/painful bladder syndrome.
MedLine Citation:
PMID:  20303099     Owner:  NLM     Status:  MEDLINE    
Abstract/OtherAbstract:
PURPOSE: No standard case definition exists for interstitial cystitis/painful bladder syndrome for patient screening or epidemiological studies. As part of the RAND Interstitial Cystitis Epidemiology study, we developed a case definition for interstitial cystitis/painful bladder syndrome with known sensitivity and specificity. We compared this definition with others used in interstitial cystitis/painful bladder syndrome epidemiological studies. MATERIALS AND METHODS: We reviewed the literature and performed a structured, expert panel process to arrive at an interstitial cystitis/painful bladder syndrome case definition. We developed a questionnaire to assess interstitial cystitis/painful bladder syndrome symptoms using this case definition and others used in the literature. We administered the questionnaire to 599 women with interstitial cystitis/painful bladder syndrome, overactive bladder, endometriosis or vulvodynia. The sensitivity and specificity of each definition was calculated using physician assigned diagnoses as the reference standard. RESULTS: No single epidemiological definition had high sensitivity and high specificity. Thus, 2 definitions were developed. One had high sensitivity (81%) and low specificity (54%), and the other had the converse (48% sensitivity and 83% specificity). These values were comparable or superior to those of other epidemiological definitions used in interstitial cystitis/painful bladder syndrome prevalence studies. CONCLUSIONS: No single case definition of interstitial cystitis/painful bladder syndrome provides high sensitivity and high specificity to identify the condition. For prevalence studies of interstitial cystitis/painful bladder syndrome the best approach may be to use 2 definitions that would yield a prevalence range. The RAND Interstitial Cystitis Epidemiology interstitial cystitis/painful bladder syndrome case definitions, developed through structured consensus and validation, can be used for this purpose.
Authors:
Sandra H Berry; Laura M Bogart; Chau Pham; Karin Liu; Leroy Nyberg; Michael Stoto; Marika Suttorp; J Quentin Clemens
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Publication Detail:
Type:  Journal Article; Research Support, N.I.H., Extramural; Validation Studies     Date:  2010-03-29
Journal Detail:
Title:  The Journal of urology     Volume:  183     ISSN:  1527-3792     ISO Abbreviation:  J. Urol.     Publication Date:  2010 May 
Date Detail:
Created Date:  2010-04-12     Completed Date:  2010-05-06     Revised Date:  -    
Medline Journal Info:
Nlm Unique ID:  0376374     Medline TA:  J Urol     Country:  United States    
Other Details:
Languages:  eng     Pagination:  1848-52     Citation Subset:  AIM; IM    
Copyright Information:
2010 American Urological Association Education and Research, Inc. Published by Elsevier Inc. All rights reserved.
Affiliation:
RAND Corp., Santa Monica, California 90407, USA. berry@rand.org
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MeSH Terms
Descriptor/Qualifier:
Cystitis, Interstitial / diagnosis*,  epidemiology*
Diagnosis, Differential
Endometriosis / diagnosis,  epidemiology
Female
Humans
Interviews as Topic
Pain / diagnosis,  epidemiology
Prevalence
Questionnaires
Sensitivity and Specificity
Syndrome
United States / epidemiology
Urinary Bladder Diseases / diagnosis*,  epidemiology*
Urinary Bladder, Overactive / diagnosis,  epidemiology
Vulvodynia / diagnosis,  epidemiology
Grant Support
ID/Acronym/Agency:
U10DK070234-01/DK/NIDDK NIH HHS

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine


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