| Cystic fibrosis carrier screening in Veneto (Italy): an ethical analysis. | |
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MedLine Citation:
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PMID: 21863402 Owner: NLM Status: Publisher |
Abstract/OtherAbstract:
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A recent study by Castellani et al. (JAMA 302(23):2573-2579, 2009) describes the population-level effects of the choices of individuals who underwent molecular carrier screening for cystic fibrosis (CF) in Veneto, in the northeastern part of Italy, between 1993 and 2007. We discuss some of the ethical issues raised by the policies and individual choices that are the subject of this study. In particular, (1) we discuss the ethical issues raised by the acquisition of genetic information through antenatal carrier testing; (2) we consider whether by choosing to procreate naturally these couples can harm the resulting child and/or other members of society, and what the moral implications of such harm would be; (3) we consider whether by choosing to avoid natural procreation carrier couples can harm current or future individuals affected by cystic fibrosis; (4) we discuss whether programs that make carrier testing available can be considered eugenic programs. |
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Authors:
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Tommaso Bruni; Matteo Mameli; Gabriella Pravettoni; Giovanni Boniolo |
Publication Detail:
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Type: JOURNAL ARTICLE Date: 2011-8-24 |
Journal Detail:
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Title: Medicine, health care, and philosophy Volume: - ISSN: 1572-8633 ISO Abbreviation: - Publication Date: 2011 Aug |
Date Detail:
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Created Date: 2011-8-24 Completed Date: - Revised Date: - |
Medline Journal Info:
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Nlm Unique ID: 9815900 Medline TA: Med Health Care Philos Country: - |
Other Details:
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Languages: ENG Pagination: - Citation Subset: - |
Affiliation:
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The FIRC Institute of Molecular Oncology (IFOM), Via Adamello 16, 20139, Milan, Italy, tommaso.bruni@ifom-ieo-campus.it. |
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From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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