| Contributing to research via biobanks: what it means to cancer patients. | |
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MedLine Citation:
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PMID: 22512791 Owner: NLM Status: Publisher |
Abstract/OtherAbstract:
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Context and objective Biobanks have become strategic resources for biomedical and genetic research. The aim of the present empirical qualitative study was to investigate how patients with cancer perceive and experience the process of donation to biobanks, focussing on the subjective meanings associated with their decisions when they are asked in a routine context to agree to their own biological specimens being used for research projects. Design A qualitative study, using semi-structured interviews to explore in depth the reasons why patients with cancer agree to participating in biobanking. Participants Nineteen patients (aged 28-82 years) being treated for colorectal cancer or leukaemia at a French cancer centre participated in this study. Results Contributing to biobanks was experienced here as a rewarding and empowering individual experience because of the psychological issues involved, such as feelings of hope associated with research, because it makes the relationship with researchers and clinicians less asymmetrical, revalorization of otherwise 'wasted' tissue, and also as an act of solidarity and reciprocity, which makes patients part of a community. Discussion and conclusion Patients seem to regard contributing to biobanks as an act of benevolence, which they are motivated to perform because of societal welfare considerations as well as the hope of subjective benefits. Knowledge about the patients' perspective and of the psychological rewards associated with tumour donation should be taken into account by physicians and caregivers discussing this topic with their patients. |
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Authors:
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Isabelle Pellegrini; Christian Chabannon; Julien Mancini; Frederic Viret; Norbert Vey; Claire Julian-Reynier |
Publication Detail:
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Type: JOURNAL ARTICLE Date: 2012-4-19 |
Journal Detail:
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Title: Health expectations : an international journal of public participation in health care and health policy Volume: - ISSN: 1369-7625 ISO Abbreviation: - Publication Date: 2012 Apr |
Date Detail:
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Created Date: 2012-4-19 Completed Date: - Revised Date: - |
Medline Journal Info:
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Nlm Unique ID: 9815926 Medline TA: Health Expect Country: - |
Other Details:
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Languages: ENG Pagination: - Citation Subset: - |
Copyright Information:
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© 2012 Blackwell Publishing Ltd. |
Affiliation:
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Inserm UMR912 SE4S, Marseille Cedex 9 IRD, UMR912, Marseille cedex 9 Institut Paoli-Calmettes, Marseille Cedex 9 Inserm UMR891 CRCM, Marseille Cedex 9 Aix-Marseille Univ, UMR912, Marseille cedex 9 Assistance Publique-Hôpitaux de Marseille, Timone Hospital, Public Health Department, Marseille Cedex 5, France. |
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From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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