Document Detail

Continuity and change in mothers' narratives of perinatal hospice.
MedLine Citation:
PMID:  21311266     Owner:  NLM     Status:  In-Data-Review    
ABSTRACT: Objectives: (1) To broadly explore the experiences of women who chose to continue pregnancies affected by lethal fetal diagnoses and (2) to develop knowledge useful to nurses and other healthcare professionals who provide perinatal hospice (PH) care. Design: Qualitative descriptive study using narrative analysis. Participants: Fifteen women who learned during their pregnancies of a lethal fetal diagnosis and chose to continue the affected pregnancies. Method: Participants' stories of their PH experiences were recorded in face-to-face interviews. A qualitative approach using narrative analysis was used to identify themes and develop suggestions for care. Results: The element of time was prevalent in mothers' stories. Some aspects of mothers' experiences continued, particularly feelings of love and connection to their babies. Mothers also reported evolving changes in their thoughts and feelings. Personal changes such as increased compassion, faith, and strength were frequently mentioned. Mothers described transient phases of highs and lows. Drawing personal meanings or life lessons was the main way mothers connected their experiences to their present lives. Conclusions: Mothers' descriptions of their experiences can enhance nurses' understanding of perinatal loss. Established care practices, such as birth planning and creating mementoes, were supported. Nurses can help mothers experiencing loss by elucidating and reflecting their personal meanings.
Anthony Lathrop; Leona Vandevusse
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Publication Detail:
Type:  Journal Article    
Journal Detail:
Title:  The Journal of perinatal & neonatal nursing     Volume:  25     ISSN:  1550-5073     ISO Abbreviation:  J Perinat Neonatal Nurs     Publication Date:    2011 Jan-Mar
Date Detail:
Created Date:  2011-02-11     Completed Date:  -     Revised Date:  -    
Medline Journal Info:
Nlm Unique ID:  8801387     Medline TA:  J Perinat Neonatal Nurs     Country:  United States    
Other Details:
Languages:  eng     Pagination:  21-31     Citation Subset:  N    
Author Affiliations: HealthNet, Indianapolis, Indiana (Dr Lathrop); and Marquette University, Milwaukee, Wisconsin (Dr VandeVusse).
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