Document Detail

Community-based partnership to identify keys to biospecimen research participation.
MedLine Citation:
PMID:  23055133     Owner:  NLM     Status:  MEDLINE    
Reported barriers to participation in biospecimen banking include unwillingness to undergo blood-draw procedures and concerns about confidentiality breaches, privacy, and discrimination. The study identified key factors and influential perspectives to address these barriers and inform methods to improve recruitment and research participation among racially diverse community. A mixed-methods, community-based participatory research orientation was used to collect formative findings to develop a pilot intervention. Methods included nine key informant interviews, three focus groups (n = 26), and 64 community surveys. Findings showed: (1) increased concern of exploitation by pharmaceutical company sponsor; (2) varied perceptions about monetary compensation for research participation; and (3) willingness to participate in a biospecimen banking study by more than 30% of the people in the community survey. Research participation and biospecimen donation may be influenced by who is sponsoring a study. Monetary incentives for study participation may be more important for African American than White participants.
Deborah O Erwin; Kirsten Moysich; Marc T Kiviniemi; Frances G Saad-Harfouche; Warren Davis; Nikia Clark-Hargrave; Gregory L Ciupak; Christine B Ambrosone; Charles Walker
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Publication Detail:
Type:  Journal Article; Research Support, N.I.H., Extramural    
Journal Detail:
Title:  Journal of cancer education : the official journal of the American Association for Cancer Education     Volume:  28     ISSN:  1543-0154     ISO Abbreviation:  J Cancer Educ     Publication Date:  2013 Mar 
Date Detail:
Created Date:  2013-03-27     Completed Date:  2013-09-12     Revised Date:  2014-03-09    
Medline Journal Info:
Nlm Unique ID:  8610343     Medline TA:  J Cancer Educ     Country:  England    
Other Details:
Languages:  eng     Pagination:  43-51     Citation Subset:  IM    
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MeSH Terms
Biomedical Research*
Community-Based Participatory Research*
Consumer Participation*
Cooperative Behavior
Neoplasms / diagnosis*,  therapy*
Grant Support
K07 CA106225/CA/NCI NIH HHS; K07CA106225/CA/NCI NIH HHS; P30CA016056-27/CA/NCI NIH HHS; R03 CA139946/CA/NCI NIH HHS; R03CA139946/CA/NCI NIH HHS; U54 CA153598/CA/NCI NIH HHS

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine

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