| Communication of information to patients with inflammatory bowel disease: A European Collaborative Study in a multinational prospective inception cohort. | |
| | |
MedLine Citation:
|
PMID: 21172215 Owner: NLM Status: Publisher |
Abstract/OtherAbstract:
|
BACKGROUND AND AIMS: Communication to patients of information about their disease has become increasingly important in modern medicine, and particularly with chronic nonfatal disorders like inflammatory bowel disease (IBD), but the subject is not adequately researched or understood. METHODS: We studied the media and preferences for communication of information in a multi-national community-based inception cohort of European and Israeli patients with IBD and 10 years follow-up, using structured questionnaires categorizing demographics, disease status, current and preferred sources of information, use of electronic media, role of patients' associations, and satisfaction level. RESULTS: The 917 patients completing the questionnaire were derived from northern (60%) and southern (40%) countries. The mean age was 48.3 years (62% under 50 years); 51% were males; 67% had ulcerative colitis, 33% Crohn's disease. Sixty-six percent of patients designated the specialist as their primary source of information, 77% indicated satisfaction with their current information, and 65% reported not receiving information about medical treatment in the past year. Patient concerns were about new research into their illness (64%), medical treatments (58%), risks and complications (51%) and genetics (42%). Preferred sources of information were paper bulletin (76%), electronic media (30%) and international organization (79%). Diagnosis (ulcerative colitis or Crohn's disease), gender, education level and country impacted significantly on patients' choices. CONCLUSIONS: In providing health care information to patients with IBD their individual attitudes and preferences must be considered. There should be greater roles for IBD patients' associations and international IBD-research organizations, and an increasing use of electronic media. |
| | |
Authors:
|
P Politi; P Bodini; M G Mortilla; M Beltrami; G Fornaciari; D Formisano; P Munkholm; L Riis; F Wolters; O Hoie; K Katsanos; C O'Morain; M Shuhaibar; P Lalli; M De Falco; S Pereira; J Freitas; S Odes; R W Stockbrügger; |
Related Documents
:
|
85005 - Two unexpected deaths from pneumothorax. 21189105 - Sickness certification for patients with acute cough/lrti in primary care in poland and... 21175705 - Current antiviral combination therapy for chronic hepatitis c patients who failed to in... 6494625 - Xerotrachea and interstitial lung disease in primary sjogren's syndrome. 16004675 - Prevalence of vitamin d inadequacy in a minimal trauma fracture population. 22459685 - Radiosurgery for unruptured cerebral arteriovenous malformations: long-term seizure out... |
Publication Detail:
|
Type: JOURNAL ARTICLE Date: 2008-5-16 |
Journal Detail:
|
Title: Journal of Crohn's & colitis Volume: 2 ISSN: 1876-4479 ISO Abbreviation: - Publication Date: 2008 Sep |
Date Detail:
|
Created Date: 2010-12-21 Completed Date: - Revised Date: - |
Medline Journal Info:
|
Nlm Unique ID: 101318676 Medline TA: J Crohns Colitis Country: - |
Other Details:
|
Languages: ENG Pagination: 226-232 Citation Subset: - |
Affiliation:
|
Department of General Medicine and Gastroenterology, Ospedale di Cremona, Cremona, Italy. |
Export Citation:
|
APA/MLA Format Download EndNote Download BibTex |
| MeSH Terms | |
Descriptor/Qualifier:
|
|
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
Previous Document: Long-term outcome after infliximab for refractory ulcerative colitis.
Next Document: Response pattern recognition in paediatric Crohn's disease patients treated with enteral nutrition.