Document Detail


Clinical and genetic aspects of Ehlers-Danlos syndrome, classic type.
MedLine Citation:
PMID:  20847697     Owner:  NLM     Status:  MEDLINE    
Abstract/OtherAbstract:
Classic Ehlers-Danlos syndrome is a heritable connective tissue disorder characterized by skin hyperextensibility, fragile and soft skin, delayed wound healing with formation of atrophic scars, easy bruising, and generalized joint hypermobility. It comprises Ehlers-Danlos syndrome type I and Ehlers-Danlos syndrome type II, but it is now apparent that these form a continuum of clinical findings and differ only in phenotypic severity. It is currently estimated that approximately 50% of patients with a clinical diagnosis of classic Ehlers-Danlos syndrome harbor mutations in the COL5A1 and the COL5A2 gene, encoding the α1 and the α2-chain of type V collagen, respectively. However, because no prospective molecular studies of COL5A1 and COL5A2 have been performed in a clinically well-defined patient group, this number may underestimate the real proportion of patients with classic Ehlers-Danlos syndrome harboring a mutation in one of these genes. In the majority of patients with molecularly characterized classic Ehlers-Danlos syndrome, the disease is caused by a mutation leading to a nonfunctional COL5A1 allele and resulting in haploinsufficiency of type V collagen. A smaller proportion of patients harbor a structural mutation in COL5A1 or COL5A2, causing the production of a functionally defective type V collagen protein. Most mutations identified so far result in a reduced amount of type V collagen in the connective tissues available for collagen fibrillogenesis. Inter- and intrafamilial phenotypic variability is observed, but no genotype-phenotype correlations have been observed. No treatment for the underlying defect is presently available for Ehlers-Danlos syndrome. However, a series of preventive guidelines are applicable.
Authors:
Fransiska Malfait; Richard J Wenstrup; Anne De Paepe
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Publication Detail:
Type:  Journal Article; Research Support, Non-U.S. Gov't; Review    
Journal Detail:
Title:  Genetics in medicine : official journal of the American College of Medical Genetics     Volume:  12     ISSN:  1530-0366     ISO Abbreviation:  Genet. Med.     Publication Date:  2010 Oct 
Date Detail:
Created Date:  2010-10-08     Completed Date:  2011-01-31     Revised Date:  2011-03-28    
Medline Journal Info:
Nlm Unique ID:  9815831     Medline TA:  Genet Med     Country:  United States    
Other Details:
Languages:  eng     Pagination:  597-605     Citation Subset:  IM    
Affiliation:
Centre for Medical Genetics, Ghent University Hospital, Ghent, Belgium.
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MeSH Terms
Descriptor/Qualifier:
Collagen Type V / genetics*
Connective Tissue / physiopathology*
Contusions
Ehlers-Danlos Syndrome* / diagnosis,  epidemiology,  genetics,  physiopathology,  therapy
Genotype
Haploinsufficiency
Humans
Joint Instability
Mutation
Phenotype
Chemical
Reg. No./Substance:
0/COL5A1 protein, human; 0/Collagen Type V
Comments/Corrections
Comment In:
Genet Med. 2011 Jan;13(1):77; author reply 77-8   [PMID:  21217464 ]

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