| Bridging evidence and consensus methodology for inherited metabolic disorders: creating nutrition guidelines. | |
| | |
MedLine Citation:
|
PMID: 22168925 Owner: NLM Status: Publisher |
Abstract/OtherAbstract:
|
Rationale, aims and objectives The management of many inherited metabolic disorders (IMDs) is dependent on nutrition intervention, but few clinical management guidelines for these uncommon disorders exist. Clinicians are forced to make nutrition treatment decisions using limited data. This results in clinical variations in both service and cost. We describe a method for establishing management guidelines to help clinicians treat patients with IMDs. Methods The Southeast Newborn Screening and Genetics Collaborative (Region 3) convened a group of nine national experts in metabolic nutrition to determine the pertinent issues in the development of nutrition management guidelines for IMDs. These experts were trained in evidence analysis and examined established consensus techniques for guideline development. Results The workgroup developed a multi-step process for guideline development known as the Delphi-Nominal Group-Delphi-Field Testing methodology, which includes a review of scientific and grey (unpublished) literature, a Delphi survey of practice, a nominal group meeting to clarify discrepancies, a formulation of recommendations and a second Delphi round to assess the degree of consensus with the proposed recommendations. External review and field testing are also built into the process. Conclusion The evidence- and consensus-based method suggested for the development of nutrition management guidelines for IMDs will result in the production of consistent and accessible guidelines that can be created in a timely and cost-effective manner and offer a validated methodology to develop management guidelines for this field to optimize outcomes. |
| | |
Authors:
|
Rani H Singh; Fran Rohr; Patricia L Splett |
Related Documents
:
|
15736835 - The pda and the oral maxillofacial surgeon. 16759945 - Common diagnostic and clinical techniques for fish. 20350905 - American association of clinical endocrinologists protocol for standardized production ... 12404605 - Antidepressants in clinical practice: limitations of assessment methods and drug response. 11481885 - Preparing for a career in medical management. 8 steps to help you evaluate your career ... 12099915 - The recognition, diagnosis and management of cerebral vasculitis: a european survey. |
Publication Detail:
|
Type: JOURNAL ARTICLE Date: 2011-12-13 |
Journal Detail:
|
Title: Journal of evaluation in clinical practice Volume: - ISSN: 1365-2753 ISO Abbreviation: - Publication Date: 2011 Dec |
Date Detail:
|
Created Date: 2011-12-15 Completed Date: - Revised Date: - |
Medline Journal Info:
|
Nlm Unique ID: 9609066 Medline TA: J Eval Clin Pract Country: - |
Other Details:
|
Languages: ENG Pagination: - Citation Subset: - |
Copyright Information:
|
© 2011 Blackwell Publishing Ltd. |
Affiliation:
|
Associate Professor, Department of Human Genetics, Emory University, School of Medicine and Director, Metabolic Nutrition Program, PD Southeastern NBS and Genetics Collaborative (Region 3), Atlanta, GA, USA Clinical Nutritionist, Children's Hospital Boston, Boston, MA, USA Evidence Analysis Consultant, Splett & Associates, LLC, Stanchfield, MN, USA. |
Export Citation:
|
APA/MLA Format Download EndNote Download BibTex |
| MeSH Terms | |
Descriptor/Qualifier:
|
|
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
Previous Document: Alcohol Use and Crime: Findings from a Longitudinal Sample of U.S. Adolescents and Young Adults.
Next Document: [Preliminary application of 3.0 T intraoperative magnetic resonance imaging neuronavigation system i...