Document Detail


Attitudes towards prenatal diagnosis and abortion in a multi-ethnic country: a survey among parents of children with thalassaemia major in Malaysia.
MedLine Citation:
PMID:  23296641     Owner:  NLM     Status:  PubMed-not-MEDLINE    
Abstract/OtherAbstract:
Thalassaemia is a public health problem in multi-ethnic Malaysia which mainly affects the Malays, Kadazan-Dusuns and Chinese. This study, the first in Malaysia, aims to evaluate the acceptability of prenatal diagnosis and abortion among Malaysian parents who have a child or children with thalassaemia major and the socio-demographic factors affecting their decision-making. A pre-structured questionnaire was distributed to parents of children with thalassaemia major. Response rate for completed surveys was 99.1 %. Out of 116 respondents, the majority (83/71.6 %) were agreeable for prenatal diagnosis, but only 33 (28.4 %) agreed to both prenatal diagnosis followed by termination of affected foetuses. Of parents who declined abortion, 77.6 % cited religious restriction as the main reason, and their religious background was a significant factor (p = 0.001), with 73.4 % of Muslim participants against termination compared to 25 % of Christians and 13.3 % of Buddhists. Gender, age, highest education level and number of children affected with thalassaemia were non-significant predictors in decision-making regarding abortion. The acceptance rate for termination of foetuses with thalassaemia major in Malaysia is low especially among the Muslims due to religious non-permissibility. Therefore, scholarly deliberations among the Malaysian Muslim religious authorities that result in a supportive stance in this issue may contribute to a more successful prevention programme.
Authors:
Chin Fang Ngim; Nai Ming Lai; Hishamshah Ibrahim; Vanassa Ratnasingam
Publication Detail:
Type:  Journal Article     Date:  2013-01-08
Journal Detail:
Title:  Journal of community genetics     Volume:  4     ISSN:  1868-310X     ISO Abbreviation:  J Community Genet     Publication Date:  2013 Apr 
Date Detail:
Created Date:  2013-03-12     Completed Date:  2013-03-14     Revised Date:  2013-05-31    
Medline Journal Info:
Nlm Unique ID:  101551501     Medline TA:  J Community Genet     Country:  Germany    
Other Details:
Languages:  eng     Pagination:  215-21     Citation Subset:  -    
Affiliation:
Department of Paediatrics, Jeffrey Cheah School of Medicine and Health Sciences, Monash University Sunway Campus, Johor Bahru, Malaysia, ngim.chin.fang@monash.edu.
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