| Attitudes towards mandatory national premarital screening for hereditary hemolytic disorders. | |
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MedLine Citation:
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PMID: 20303196 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
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BACKGROUND: A compulsory national premarital screening (PMS) program for hereditary hemoglobinopathies was established in the Kingdom of Saudi Arabia (KSA) in February 2004. Termination of pregnancy of affected fetuses is not widely acceptable. Many couples decide to get married regardless of the result. A trend towards coercive interference with this decision is emerging. OBJECTIVES: To examine the attitude of young educated individuals regarding the national PMS program and its implementation. METHODS: Eight hundred university students (aged 18-29) filled in a self-administered structured questionnaire. Data were analyzed using the EPI Info Statistical Package version 6. A P-value <0.05 was considered significant. RESULTS: Most students favor the PMS program but there were concerns regarding mandating the testing and interference with individual decision making. Significantly more women favored testing and coercive interference with the decision to marry. CONCLUSIONS: Further public education and wide spread genetic counseling prior to testing is essential for the success of the program. Screening singles on admission to university prior to any commitment may be preferable than screening immediately before the marriage certificate is issued. |
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Authors:
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Jumana Y Al-Aama |
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Publication Detail:
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Type: Journal Article Date: 2010-03-29 |
Journal Detail:
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Title: Health policy (Amsterdam, Netherlands) Volume: 97 ISSN: 1872-6054 ISO Abbreviation: Health Policy Publication Date: 2010 Sep |
Date Detail:
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Created Date: 2010-07-27 Completed Date: 2010-11-09 Revised Date: - |
Medline Journal Info:
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Nlm Unique ID: 8409431 Medline TA: Health Policy Country: Ireland |
Other Details:
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Languages: eng Pagination: 32-7 Citation Subset: H |
Affiliation:
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Princess Al Jawhara Center of Excellence in Research of Hereditary Disorders and Faculty of Medicine, King Abdulaziz University, Jeddah, Saudi Arabia. jalama@kau.edu.sa |
Export Citation:
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| MeSH Terms | |
Descriptor/Qualifier:
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Adolescent Adult Attitude to Health* Female Hemoglobinopathies / diagnosis*, prevention & control Humans Male Mandatory Testing* / legislation & jurisprudence Marital Status Premarital Examinations / psychology Questionnaires Saudi Arabia Students / psychology Students, Medical / psychology Young Adult |
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