| Are Indian Parents of Children with Down Syndrome Engaged in the Blame Game? | |
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MedLine Citation:
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PMID: 23080267 Owner: NLM Status: Publisher |
Abstract/OtherAbstract:
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OBJECTIVES: To study blame ascription among parents of children with Down syndrome and to study its correlation with sociodemographic factors, parental perception of dysmorphisms and parents' knowledge about Down syndrome. This is a prospective, observational, non-interventional case control study. METHODS: Interview of biological parents of children with Down syndrome less than 12 y of age was taken. Dysmorphism and parents' feeling of blame was assessed and graded by Likert's scale. Controls were parents of age and gender matched children with non-genetic chronic disorders. RESULTS: During the study period, 50 mothers and 46 fathers of cases and 50 control parents were interviewed. Parents in the study group were older; the mothers were better educated and had more frequent antenatal visits. There was no significant difference in the proportion of parents counseled but genetic counseling was associated with a significantly higher proportion of parents having knowledge about Down syndrome. A higher proportion of parents perceived their child with Down syndrome being dysmorphic. Blame ascription was not significantly different among the two groups and was seen only in a small proportion of parents of cases. When it did occur, it was directed at health professionals. CONCLUSIONS: Blame ascription is not frequent in a cohort of Indian parents of children with Down syndrome even when dysmorphism is perceived by parents. Genetic counseling was associated with better knowledge about Down syndrome in the parents. |
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Authors:
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Mamta N Muranjan; Sweta R Budyal; Henal R Shah |
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Publication Detail:
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Type: JOURNAL ARTICLE Date: 2012-10-19 |
Journal Detail:
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Title: Indian journal of pediatrics Volume: - ISSN: 0973-7693 ISO Abbreviation: Indian J Pediatr Publication Date: 2012 Oct |
Date Detail:
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Created Date: 2012-10-19 Completed Date: - Revised Date: - |
Medline Journal Info:
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Nlm Unique ID: 0417442 Medline TA: Indian J Pediatr Country: - |
Other Details:
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Languages: ENG Pagination: - Citation Subset: - |
Affiliation:
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The Genetic Clinic, Department of Pediatrics, Seth GS Medical College & KEM Hospital, Parel, Mumbai, 400012, India, muranjanmamta@gmail.com. |
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From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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