Document Detail


Appreciating life: being the father of a child with severe cerebral palsy.
MedLine Citation:
PMID:  22210303     Owner:  NLM     Status:  In-Data-Review    
Abstract/OtherAbstract:
ABSTRACT: This phenomenological study examined the experience of being the father of a child with severe cerebral palsy (CP). Participants were selected using purposive sampling. Two interviews were conducted with 6 English-speaking, biological fathers whose children with CP (ages 5-27 years) were enrolled in a residential and day school in northeastern United States. Audiotaped interviews were transcribed, and thematic analysis was conducted using van Manen's methodology. Themes identified were as follows: Lost in birth; My beautiful unique child; Illness as a way of life…you can't get used to it and after a while it feels like no one cares; Partners-loyalty and commitment; How the world receives my child; Healthcare providers-I'm here; Torn…when your child can't live at home…finding a place to live and grow; and Faith. Clinicians should encourage, value, and include fathers' input during discussions of medical and social problems and when developing long-term care plans. Further research exploring the experiences of fathers of children with CP should be conducted.
Authors:
Michelle Gellman Appelbaum; Janice L Smolowitz
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Publication Detail:
Type:  Journal Article    
Journal Detail:
Title:  The Journal of neuroscience nursing : journal of the American Association of Neuroscience Nurses     Volume:  44     ISSN:  1945-2810     ISO Abbreviation:  J Neurosci Nurs     Publication Date:  2012 Feb 
Date Detail:
Created Date:  2012-01-02     Completed Date:  -     Revised Date:  -    
Medline Journal Info:
Nlm Unique ID:  8603596     Medline TA:  J Neurosci Nurs     Country:  United States    
Other Details:
Languages:  eng     Pagination:  36-42     Citation Subset:  IM; N    
Affiliation:
Janice L. Smolowitz, EdD DNP ANP, is a senior associate dean and professor of clinical nursing at Columbia University School of Nursing, New York, NY.
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