| Appreciating life: being the father of a child with severe cerebral palsy. | |
| | |
MedLine Citation:
|
PMID: 22210303 Owner: NLM Status: In-Data-Review |
Abstract/OtherAbstract:
|
ABSTRACT: This phenomenological study examined the experience of being the father of a child with severe cerebral palsy (CP). Participants were selected using purposive sampling. Two interviews were conducted with 6 English-speaking, biological fathers whose children with CP (ages 5-27 years) were enrolled in a residential and day school in northeastern United States. Audiotaped interviews were transcribed, and thematic analysis was conducted using van Manen's methodology. Themes identified were as follows: Lost in birth; My beautiful unique child; Illness as a way of life…you can't get used to it and after a while it feels like no one cares; Partners-loyalty and commitment; How the world receives my child; Healthcare providers-I'm here; Torn…when your child can't live at home…finding a place to live and grow; and Faith. Clinicians should encourage, value, and include fathers' input during discussions of medical and social problems and when developing long-term care plans. Further research exploring the experiences of fathers of children with CP should be conducted. |
| | |
Authors:
|
Michelle Gellman Appelbaum; Janice L Smolowitz |
Related Documents
:
|
16977503 - Genotype by environment interaction in adolescents' cognitive aptitude. 22084323 - Attitudes toward newborn screening for cytomegalovirus infection. 9589343 - Adolescents' insight in heavy drinking. |
Publication Detail:
|
Type: Journal Article |
Journal Detail:
|
Title: The Journal of neuroscience nursing : journal of the American Association of Neuroscience Nurses Volume: 44 ISSN: 1945-2810 ISO Abbreviation: J Neurosci Nurs Publication Date: 2012 Feb |
Date Detail:
|
Created Date: 2012-01-02 Completed Date: - Revised Date: - |
Medline Journal Info:
|
Nlm Unique ID: 8603596 Medline TA: J Neurosci Nurs Country: United States |
Other Details:
|
Languages: eng Pagination: 36-42 Citation Subset: IM; N |
Affiliation:
|
Janice L. Smolowitz, EdD DNP ANP, is a senior associate dean and professor of clinical nursing at Columbia University School of Nursing, New York, NY. |
Export Citation:
|
APA/MLA Format Download EndNote Download BibTex |
| MeSH Terms | |
Descriptor/Qualifier:
|
|
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
Previous Document: Impact of treadmill exercise on efficacy expectations, physical activity, and stroke recovery.
Next Document: An overview of nonpathological geroneuropsychology: implications for nursing practice and research.