| Applying cognitive debriefing to pre-test patient-reported outcomes in older people with multiple sclerosis. | |
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MedLine Citation:
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PMID: 20151208 Owner: NLM Status: In-Process |
Abstract/OtherAbstract:
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PURPOSE: The aim of this study was to reduce respondent burden and decrease data errors in patient-reported outcomes (PROs) intended for a postal survey measuring health and lifestyle factors that may affect quality of life in older people with multiple sclerosis (MS). METHODS: Participants (n = 18) were recruited from a database of outpatient visits. Using the qualitative diagnostic method, cognitive debriefing, participants completed five standardized questionnaires; Frenchay Activities Index, Barthel Index, Simple Lifestyle Indicator Questionnaire, EuroQoL EQ-5D and Personal Resources Questionnaire 2000. PRO item issues and respondent behaviors such as skipping items were recorded. Data collection was an iterative process whereby difficulties experienced by 2-3 subjects were used to modify the survey for following respondents until data saturation was reached. RESULTS: Most respondents had serious difficulties with at least one PRO item. Response errors fell into three main categories: (1) respondents did not read instructions and completed the item incorrectly, (2) respondents did not understand the question and required examples to clarify and (3) respondents felt that the pre-determined response options did not apply to them. PRO reformatting, minor modifications to item wording and addition of item examples improved precision and reduced respondent burden. CONCLUSION: Our findings support the notion that methods such as cognitive debriefing help improve precision of self-reported measures in a special population such as ours. |
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Authors:
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Michelle Ploughman; Mark Austin; Mark Stefanelli; Marshall Godwin |
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Publication Detail:
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Type: Journal Article; Research Support, Non-U.S. Gov't Date: 2010-02-12 |
Journal Detail:
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Title: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation Volume: 19 ISSN: 1573-2649 ISO Abbreviation: Qual Life Res Publication Date: 2010 May |
Date Detail:
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Created Date: 2010-04-12 Completed Date: - Revised Date: - |
Medline Journal Info:
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Nlm Unique ID: 9210257 Medline TA: Qual Life Res Country: Netherlands |
Other Details:
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Languages: eng Pagination: 483-7 Citation Subset: IM |
Affiliation:
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Clinical Research, Rehabilitation Program, Eastern Health Authority, L.A. Miller Centre, 100 Forest Rd., St. John's, NL, Canada. mploughm@mun.ca |
Export Citation:
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From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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