Document Detail

African american participation in health-related research studies: indicators for effective recruitment.
MedLine Citation:
PMID:  23358288     Owner:  NLM     Status:  In-Data-Review    
OBJECTIVE: : To elucidate factors that influence African American willingness to participate in health-related research studies.
METHODS: : The African American Alzheimer disease research study group at North Carolina A&T State University designed an in-person questionnaire and surveyed more than 700 African American adults on their willingness to participate in health-related research studies. The questionnaire was distributed and collected in a nonclinical setting during the years 2008 and 2009. This study was approved by the North Carolina A&T State University Institutional Review Board.
RESULTS: : Of the 733 valid respondents, 16% had previously participated in a health-related research study. Of these, more than 90% were willing to participate again in future research studies. Of the 614 who had never participated in a research study, more than 70% expressed willingness to participate. The majority (75%) of experienced research study participants (RSP) were older than 40 years compared with 45% of non-research study participants. Experienced research participants were also twice as likely to have a college degree compared with non-research study participants. Seventy-three percent of non-research study participants were willing to participate in research studies in the future. The factors that were probable impediments to participation included lack of time and trust. Men with knowledge of the Tuskegee Syphilis Study were 50% less likely to be willing to participate compared with those who had not heard of Tuskegee Syphilis Study.
CONCLUSIONS: : African Americans are willing to participate in health-related research studies. Several factors such as the appropriate incentives, community trust building, outreach, and community partnership creation are necessary for engaging minority participants. Incorporating factors that target African American enrollment in research design and implementation, such as increased training of minority health ambassadors and African American researchers and public health specialists, are needed to better engage minorities across generations, in research.
Rosalyn Lang; Vinaya A Kelkar; Jennifer R Byrd; Christopher L Edwards; Margaret Pericak-Vance; Goldie S Byrd
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Publication Detail:
Type:  Journal Article    
Journal Detail:
Title:  Journal of public health management and practice : JPHMP     Volume:  19     ISSN:  1550-5022     ISO Abbreviation:  J Public Health Manag Pract     Publication Date:  2013 Mar 
Date Detail:
Created Date:  2013-01-29     Completed Date:  -     Revised Date:  -    
Medline Journal Info:
Nlm Unique ID:  9505213     Medline TA:  J Public Health Manag Pract     Country:  United States    
Other Details:
Languages:  eng     Pagination:  110-8     Citation Subset:  T    
Department of Biology, North Carolina A&T State University (Drs Lang and Kelkar, and Ms JR Byrd); College of Arts and Sciences at North Carolina A&T State University (Dr GS Byrd); Biofeedback Laboratory, Chronic Pain Management Program, Psychiatry, Pain and Palliative Care Center, Duke University Bryan Alzheimer's Disease Research Center (Dr Edwards); Human Genomic Programs, John P. Hussman Institute for Human Genomics University of Miami (Dr Pericak-Vance).
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