Document Detail


African American, Chinese, and Latino family caregivers' impressions of the onset and diagnosis of dementia: cross-cultural similarities and differences.
MedLine Citation:
PMID:  16326660     Owner:  NLM     Status:  MEDLINE    
Abstract/OtherAbstract:
PURPOSE: We explored cross-cultural similarities and differences in minority family caregivers' perceptions of the onset and diagnosis of Alzheimer's disease in their relatives, with specific attention to clinical encounters.
DESIGN AND METHODS: We performed a meta-synthesis of three qualitative studies conducted in Massachusetts with 22 African American, Latino, and Chinese caregivers.
RESULTS: All participants conveyed striking similarities of thought about normalization of cognitive symptoms until one critical event, usually relocation, precipitated family awareness that an elder's behavior was not the result of "normal aging." A lack of knowledge about Alzheimer's disease, rather than culturally influenced beliefs, was the major deterrent to having an elder's memory assessed. Community physicians' failure to recognize Alzheimer's disease or refer to specialists was more problematic than language or ethnic differences. Physicians' disrespect for caregivers' concerns about memory loss was particularly noted by African Americans, stigmatization of persons with Alzheimer's disease was noted by Chinese, and fears that acculturation would end family home care was noted by Latinos.
IMPLICATIONS: Amid ethnocultural differences, there are many similarities in needs that offer providers the possibility to unify quality improvements in Alzheimer's disease outreach, education, and physicians' services. Suggestions include providing the public with more confidential access to Alzheimer's disease information, increasing dementia awareness among community physicians, motivating clinicians to adopt culturally sensitive communication patterns, and providing community education to reduce normalization by families and stigmatization of persons with Alzheimer's disease.
Authors:
Diane Feeney Mahoney; Jane Cloutterbuck; Susan Neary; Lin Zhan
Publication Detail:
Type:  Journal Article; Meta-Analysis; Research Support, N.I.H., Extramural    
Journal Detail:
Title:  The Gerontologist     Volume:  45     ISSN:  0016-9013     ISO Abbreviation:  Gerontologist     Publication Date:  2005 Dec 
Date Detail:
Created Date:  2005-12-05     Completed Date:  2006-04-12     Revised Date:  2014-09-08    
Medline Journal Info:
Nlm Unique ID:  0375327     Medline TA:  Gerontologist     Country:  United States    
Other Details:
Languages:  eng     Pagination:  783-92     Citation Subset:  IM    
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MeSH Terms
Descriptor/Qualifier:
Adaptation, Psychological
Adult
Aged
Caregivers / psychology*
Cross-Cultural Comparison*
Dementia / diagnosis*
Ethnic Groups*
Female
Humans
Male
Massachusetts
Middle Aged
Grant Support
ID/Acronym/Agency:
K24 NR000141/NR/NINR NIH HHS; NR 00141-05/NR/NINR NIH HHS
Comments/Corrections

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine


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