Document Detail


Activity level, functional health, and quality of life of children with myelomeningocele as perceived by parents.
MedLine Citation:
PMID:  21042893     Owner:  NLM     Status:  MEDLINE    
Abstract/OtherAbstract:
BACKGROUND: To provide the best health care for individuals with myelomeningocele (MM), clinicians and researchers need to understand their health and functional status as well as quality of life. The literature is mixed regarding the relationship between motor level and health-related quality of life (HRQOL) for these individuals.
QUESTIONS/PURPOSES: We compared the HRQOL of children with MM at the L2 and above and L3-5 motor level and to demonstrate how having a shunt, age, and body mass index affect HRQOL instruments for these two motor level groups.
METHODS: We recruited 50 patients with MM (24 male, 26 female) with a mean age of 11.5 years (range, 5-18 years) and motor levels of L2 and above (n = 15) and L3-5 (n = 35). Guardians were interviewed using standardized functional and HRQOL tools (the Pediatric Quality of Life and the Pediatric Outcomes Data Collection Instrument); height, weight, presence of a shunt, ambulatory level, and body mass index were also collected.
RESULTS: We found a decreased HRQOL score for children with MM in the L2 and above motor level compared with those in the L3-5 motor level group. HRQOL had no correlation with body mass index and limited correlation with age. The presence of a shunt correlated with a decreased HRQOL.
CONCLUSIONS: Children with MM had deficits in HRQOL and that was associated with neurologic level and presence of a shunt.
Authors:
Ann Flanagan; Marianne Gorzkowski; Haluk Altiok; Sahar Hassani; Kwang Woo Ahn
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Publication Detail:
Type:  Comparative Study; Journal Article    
Journal Detail:
Title:  Clinical orthopaedics and related research     Volume:  469     ISSN:  1528-1132     ISO Abbreviation:  Clin. Orthop. Relat. Res.     Publication Date:  2011 May 
Date Detail:
Created Date:  2011-04-01     Completed Date:  2011-06-07     Revised Date:  2013-07-03    
Medline Journal Info:
Nlm Unique ID:  0075674     Medline TA:  Clin Orthop Relat Res     Country:  United States    
Other Details:
Languages:  eng     Pagination:  1230-5     Citation Subset:  AIM; IM    
Affiliation:
Research Department, Shriners Hospitals for Children-Chicago, 2211 N Oak Park Avenue, Chicago, IL 60707, USA. aflanagan@shrinenet.org
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MeSH Terms
Descriptor/Qualifier:
Activities of Daily Living*
Adolescent
Age Factors
Body Mass Index
Cerebrospinal Fluid Shunts
Chicago
Child
Child, Preschool
Disability Evaluation
Female
Humans
Lumbar Vertebrae
Male
Meningomyelocele / diagnosis,  physiopathology,  psychology*,  surgery
Motor Activity*
Neurologic Examination
Parents / psychology*
Perception*
Quality of Life*
Questionnaires
Spinal Cord / physiopathology*
Thoracic Vertebrae
Comments/Corrections

From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine


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