| Implementation of European standards of care for cystic fibrosis - provision of care. | |
MedLine Citation:
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PMID: 19703795 Owner: NLM Status: MEDLINE |
Abstract/OtherAbstract:
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BACKGROUND: Several guidelines for cystic fibrosis (CF) caregivers exist, but information about their implementation is lacking. METHODS: Adherence to European Consensus Guidelines for CF was studied by sending surveys to named healthcare professionals in 487 CF centres/units. Data were analysed qualitatively. RESULTS: Data were obtained from 177 CF clinics, providing care for 21,177 patients (33% response rate). Access to specialist healthcare professionals was good according to 80% of respondents, although only 59% reported access to specialist pharmacists. Of the respondents, 16% reported unlimited access to inpatient CF beds, however 22% reported a lack of availability of immediate care. Most respondents (84%) reviewed their patients quarterly as outpatients. Shared-care models were used by 84% of respondents. Availability and adequacy of funding presented an issue for many, although 8% of respondents indicated that key funding was derived from CF charities. CONCLUSIONS: The respondents demonstrated a high degree of implementation of European Consensus Guidelines. However, areas for improvement include shared care, access to care and funding inequalities. |
Authors:
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J S Elborn; M Hodson; C Bertram |
Publication Detail:
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Type: Journal Article; Research Support, Non-U.S. Gov't Date: 2009-08-22 |
Journal Detail:
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Title: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society Volume: 8 ISSN: 1873-5010 ISO Abbreviation: J. Cyst. Fibros. Publication Date: 2009 Sep |
Date Detail:
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Created Date: 2009-09-08 Completed Date: 2009-12-11 Revised Date: - |
Medline Journal Info:
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Nlm Unique ID: 101128966 Medline TA: J Cyst Fibros Country: Netherlands |
Other Details:
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Languages: eng Pagination: 348-55 Citation Subset: IM |
Affiliation:
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Centre for Infection an Immunity, Queen's University, Belfast City Hospital, UK. stuart.elborn@bch.n-i.nhs.uk |
Export Citation:
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| MeSH Terms | |
Descriptor/Qualifier:
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Caregivers Cystic Fibrosis / therapy* Europe Guideline Adherence* Health Care Surveys Humans Patient Care / standards* Practice Guidelines as Topic* Questionnaires |
From MEDLINE®/PubMed®, a database of the U.S. National Library of Medicine
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